Category: crbf

Zero Children’s Cancer research grant

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To mark the commencement of Global Sarcoma Awareness Month, it is our great pleasure to announce the “Wipfli Family Sarcoma Research Grant”, a $186,799 grant, made possible by the family’s incredible efforts throughout Celebrity Apprentice Australia.  But it doesn’t end there – joining with us is The Kids Cancer Project who have stepped in and doubled the grant.

All in all, $373,597 will be heading towards sarcoma specific research under the auspices of  the Children’s Cancer Institute of Australia  and the Zero Childhood Cancer Phosphoproteomic Study!

The study will be led by Dr Emmy Fleuren, the sarcoma research lead in the Translational Tumour Biology Group at the CCIA. Emmy is leading the way in the paediatric and adolescent space in Australia, and the future of sarcoma is all the better from having her expertise.

We need not remind you of the efforts of Wippa and Lisa to facilitate the money raised throughout Celebrity Apprentice.  They are an incredibly special family, and their efforts to grow Cooper’s legacy is inspirational.

The Kids Cancer Project, with a special mention to CEO Owen Finegan, have supported high level paediatric, adolescent and young adult cancer research in Australia for almost three decades.  Their commitment to funding research projects for all childhood cancers is as humbling as it is life-changing for those young patients who stand to benefit.

We extend our deepest gratitude to each of these outstanding contributors to sarcoma research in Australia.

Head to the Children’s Cancer Institute social media accounts to read more about the research!

Sarcoma Awareness Month – The important role of the carer

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ANZSA begin their Sarcoma Awareness Month webinar series with an in-depth look at the role of the carer.

Mandy Basson, Managing Director of Sock it to Sarcoma, and Associate Professor Georgia Halkett will join ANZSA Consumer Advisory Panel member, Karen Laurati in shining the light on an area which is so often overlooked.

Mandy is well -versed with the often unmet needs of the carer, having been by her daughter Abbie’s side from diagnosis and throughout her treatment, then continuing her daughter’s vision to make a profound difference in the lives of sarcoma patients.

The organisation has provided over a decade of support to patients, families and carers and continues to to provide an important resource for those sarcoma patients who need it most.

Associate Professor Georgia Halkett will bring her highly professional perspective to the table, after the release of her recent research paper earlier this year – The unmet needs of carers of patients diagnosed with sarcoma: A qualitative study.

If you or a family member is a carer for a sarcoma patient, this is a webinar not to be missed.

Use the QR code below to register, or go to the ANZA FaceBook page by pressing the link below:

https://www.facebook.com/ANZSarcoma/

Unmet needs for patient support in rare cancers

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Christine Cockburn, Patient Care Co-ordinator with Rare Cancers Australia shares her vast experience on addressing the unmet needs of those who live with a rare cancer. She will be joined by ANZSA Consumer Advisory Panel member Karen Laurati, who knows this road well, having been diagnosed with sarcoma, undergone treatment, and now enters survivorship, and a very new phase of her life.

Christine leverage her vast experience with a broad cross section of rare cancers, to provide compelling insight into an area that has the propensity to be overlooked, from treatment and throughout diagnosis. This will be balanced by Karen’s invaluable patient perspective, having lived the nightmare of a sarcoma diagnosis.

If you are a patient diagnosed with a rare cancer, in particular sarcoma, or a carer/family member, this webinar will be an extremely useful tool in finding additional resources which may potentially assist you.

Use the QR code below to register or press on the link below to go directly to the ANZSA website. https://www.facebook.com/ANZSarcoma/