Superheroes don’t always wear a cape

“I believe a real-life superhero is someone who has extraordinary or superhuman abilities or skills. They are people who deserve our gratitude.

During my cancer journey I could name a few, however right at the top of this list is my oncologist Professor Stewart Kellie, the best of the best in my eyes.

After being diagnosed on my 12th birthday with high grade metastatic osteoblastic osteosarcoma, I thank the universe every day for Prof Kellie being assigned to me.

He told me that over the next few months things were going to be tough, I would lose most of the bone in my leg and would have to undergo many rounds of chemotherapy to beat this disease (no different to anyone fighting this hideous disease). But he also promised me that he would always tell me the truth, he would never lie to me no matter how hard his news was. That I had to trust him always and we would get through it all together.

He kept his promise to me, he made me feel so safe and protected and I knew he had my back.

I had a lot of time to think about things while being treated. How dedicated the doctors and nurses were, wondered what their families were like, and how hard Prof Kellie must have worked to become the amazing man he was. I was grateful for him from the beginning.

After many operations and many months of chemotherapy it was also Prof Kellie who delivered the news to me that I was cancer free and I was able to go back home to my hometown, some 300km from the Sydney Children’s Hospital at Westmead.

When Prof broke this news to me, you can imagine the relief for me and those around me. In our last appointment before we left that day Prof said to me “Molly, any more questions before you go?”. I said “Yes Prof I have one. You are one of my real-life superheroes, and I’ve always wondered what superheroes eat. Prof what did you have for dinner last night?”.

We laughed, he answered my question, and I was lucky enough to go home shortly after.

When I relapsed more recently it was again my superhero Prof Kellie that delivered the news after a routine scan. I knew it upset him too, but he again had the ball rolling and I knew I was in the hands of the best.

After my surgery, where they removed the sarcoma nodules from my lung, one of the first people by my bedside on the ward was Prof Kellie.

When I spotted him I burst into tears. Prof said “I’m glad I don’t have this effect on all my patients Molly” before my Mum said “Moll why are you crying, Prof doesn’t make you sad does he?”. I responded with “No he doesn’t. He makes me feel safe and I’m so glad to see him”.

And that why he is my superhero – he is extraordinary, he is so skilful and super, super clever. Regardless of the news he has had to tell me, he has always made me feel safe and he deserves my gratitude.

So, Professor Kellie, this superheroes week for 2022, I hereby rename you – Superhero Professor Stewart Kellie.

You are my real-life superhero and I salute you. Today, always, and forever.” Molly Croft

Meet Lisa Greissl – Founder The Big Hug Box


Lisa Greissl is Founder of Newcastle based “The Big Hug Box”

Lisa’s remarkable body of work came to the attention of all at CRBF in early 2018, after she reached out to us, and a meeting followed during one of the trips she does regularly to Sydney, to deliver the boxes of joy, that have lifted the spirits of all who received them for many years.

We came to know Lisa as a very special young woman, who despite her own experience with cancer, spends every day brightening the lives of those now walking this road behind her.  She is a true force of nature.

After experiencing a her own rare cancer diagnosis in 2015, Lisa advocates for patient wellbeing, health and support and acknowledges the importance of the little acts of kindness that play a significant part in contributing to patient wellbeing which contributed to The Big Hug Box being born.

The Big Hug Box sets out to make the journey of those living with a cancer diagnosis, a little more bearable. Filled with products that are sourced from small business in Newcastle wherever possible, Lisa chooses natural and organic products.  Lisa and her team also encourage random acts of kindness amongst the community by encouraging people to purchase a RHoK Box (Random Hug of Kindness Box) whereby members of the community can by a box that will be delivered and given out randomly to patients at Chris O’Brien Lifehouse, where Lisa was treated.

The team at The Big Hug Box  have raised over $36,000 for cancer research in Australia.

“I am so proud of what The Big Hug Box has achieved and continues to achieve. We have built an incredibly supportive community around us who value the importance of kindness and are aligned with our values and our purpose. Together we will make a positive impact on the lives affected by cancer with a Big Hug and supporting cancer support services and organisations with profits from every sale” Lisa Greissl.Go to https://thebighugbox.com/ to bring joy to the life of someone you know who may be in need of a Big Hug.

Can you help the Stockman family?


Meet Jordan Stockman @J_o_r_d_a_n__x .  A successful fashion model, a commanding presence on social media & one of the most positive, likeable young men you could ever hope to meet. 11 months ago, Jordan was diagnosed with metastatic Ewing sarcoma, and has undergone intensive treatment. Side effects have been savage, and his remarkable family have been by his side throughout – mum, dad, & five siblings.

This devastating story continues. Jordan’s mum Ahuaiti, became Jordan’s carer after his diagnosis, ceasing full time work to devote time to her son, and as described by Jordan, she is the centre of his universe. Jordan’s remarkable dad, Darrin, became the sole breadwinner for the family.

In a tragic turn of events, 5 weeks after Jordan’s diagnosis, Ahuaiti was diagnosed with advanced pancreatic cancer, leaving this beautiful family of 8 shattered. The months that followed have been equally devastating. They have lost their family home and are forced to live with friends until accommodation can be found.

What this family has endured over the past year is unimaginable, yet from the outside looking in, you would never know. They continue to keep a positive outlook, find strength within the love they have for each other, & are continuously thinking of others.  When Jordan was asked what would make life a little easier, he simply said he “wanted to increase awareness of sarcoma”.

As we enter our third week of #sarcomaawarenessmonth, those like Jordan remain the human face of this insidious cancer. The entire Stockman family, and their immense suffering over the last 11 months, are a reminder of the utter destruction this cancer causes.

A huge shout out to the stellar clinical team at the PA Hospital Brisbane for their support of this remarkable family.

We’ve never doubted the generosity of our loyal community, so if you can contribute to the family’s GoFundMe, we STRONGLY encourage you to do so. If you do one good deed for the day, the month, or the year, make it a donation to this cause. This is a family in dire need.

A LIST OF COMMON SYMPTOMS APPEARS ON OUR WEBSITE.  IF IN DOUBT PLEASE REFER TO A MEDICAL PRACTITIONER.

Poor Man’s Everest racing for patient support


Lachie Mactier, Hunter Hordern and Angus Joyce are just the type of mates you need around you when your world falls apart. Just ask CRBF’s Patient Advocate, Jack Gibson. Jack was diagnosed with osteosarcoma in 2017, and there has never been one moment he has felt the need to walk what can be a very lonely road, alone.

Jack has a remarkable family, but he is also blessed with a remarkable friendship group that blossomed at school, and continued throughout Uni to today.

Several months ago, the boys, under the alias @poor_mans_everest contacted CRBF with a proposal to complete 2 events. Jack, Hunter, and Angus will form a relay team and compete in the Noosa Triathlon in October. Not to be outdone, Lachie will be running in the @blackmoresaustralia marathon.

They are kicking their campaign off in global Sarcoma Awareness Month, and will not only be raising funds for the support of sarcoma patients and their families in Australia, but they will also be spreading awareness from today when their campaign launches, and throughout the coming months.

We would like to take this opportunity to extend our heartfelt thanks to Lachie, Angus and Hunter for being there for Jack, but for their endless commitment to improving resources for sarcoma patients and their contribution over many years to clinical research.

Give the boys a follow on instagram at @poor_mans_everest and watch them as they train and work towards these huge events!

City to Surf 2022 – registrations now open


It’s been a long lockdown. Let’s not put those Strava efforts to waste – dust off the runners, and join CRBF on 14 August for the 2022 @city2surf !!

Have a great day completing the 14km course at your own pace, while contributing funds to CRBF Patient Support.

Whilst we are dedicated to finding a cure for sarcoma, we are equally invested in reducing angst for patients and families during their sarcoma journey. We tailor our patient support to suit the individual and whatever their situation calls for. Head to https://www.crbf.org.au/patient-support/ to find out more about this service.

To sign up to for the #city2surf and raise funds for this vitally important service, please head to the link in our bio!

We appreciate this can be a confusing process so if you encounter any issues please don’t hesitate to reach out.

A sad goodbye to a courageous young man


Today, 18 year old Jye Ferrier was farewelled by his loving family and friends at a truly beautiful service on the Gold Coast.

We awoke to the tragic news early last Friday, that this courageous young man loved by all, had lost his life to osteosarcoma, and the sun immediately disappeared behind a cloud.

The courage and determination Jye showed throughout what can only be described as an intensely cruel treatment process, defies words.  Those closest to Jye today remembered the kind, sweet, considerate, selfless young man whose smile, despite his plight in life, continued to light up a room.

Jye always put the needs of others first, despite the pain and sheer angst that came his way during treatment.

Jye made his mark on the world in such a significant way, and he will always be etched in the memory of those whose lives have been deeply touched by his special presence.

Jye’s family Lisa, Dean, Tristan and Byron left Jye in no doubt as to how much he was loved.  It is difficult to imagine a family more cohesive, attentive and supportive. Jye was always wrapped in the pure love of this remarkable family.

Sometimes there are simply no words other than to send our love, strength and our heartfelt condolences to  Lisa, Dean, Tristan, Byron, Jye’s extended family and his very special group of young friends who have spent the past week contemplating life without him.

Forever young…

https://www.instagram.com/p/CdIVqvlrItY/?hl=en

“Swing 4 Sarcoma” Corporate Golf Day

We are very pleased to announce that the Sponsorship and Team packages are now available for Swing4Sarcoma.

Each package is designed so that everyone has a chance to get involved and help raise funds for some much needed Sarcoma research through the @crbfoundation

If you’d like to know more or RSVP to one of the options in the images above, please DM us through our instagram account, and we can get back to you as soon as possible. We are still working out the logistics for the event and will share information once it’s ready.

CRBF is delighted to share this recent instagram post with our network of super keen golfers.

Teams are filling fast, so follow the instructions to secure your spot soon to avoid disappointment.

Spend an idyllic day in the magnificent Southern Highlands only 90 mins from Sydney, with friends, our celebrity golfers, delicious food and beverages, and the opportunity to win great prizes on the day – all while contributing funds to assist those living with a sarcoma diagnosis through our many funding streams.

We extend our sincere thanks to Ed, Patrick, Tim and Simon (all of whom have personal experience with sarcoma) for providing this wonderful opportunity.

Further details below:

Swing-For-Sarcoma

“Feel the Magic ” for bereaved children


CRBF & Feel the Magic

At CRBF we are always looking to partner with like minded organisations whose work  assists our patients and families.  One such organisation is Feel the Magic.  Cooper’s older brother Mitch has been a voluntary mentor at Camp Magic for almost four years whilst studying to become a clinical psychologist.  Suffice to say, he always returns from camps telling us how much he takes away from the experience.

What Feel the Magic do?

Feel the Magic is an Australian charity providing early intervention grief education programs for kids aged 7 to 17.  These children are experiencing pain and isolation due to the death of a parent, guardian, or sibling. Their aim is to create a world where grieving kids and their families feel supported, empowered, and can begin to move forward with their lives.

Why is their work critical?

1 in every 20 children aged 7-17 will experience the death of a parent . In Australia, just over 300,000 children will lose a parent before they reach the age of 18. To put this into perspective, there is most likely a child grieving the loss of a parent in every class at school. In addition to this, children also experience sibling and legal guardian loss. Grieving children who have experienced the death of someone they love can feel isolated and alone. They require ongoing support in developing strategies to cope with and move forward with their lives following a loss.

At Feel the Magic their  evidence-based programs have been developed by a clinical psychologist, and are delivered by trained professionals. Programs follow a structured psycho-educational framework.  This increases confidence and self-respect, teaching practical coping strategies to grieve in a healthy & positive way. Feel the Magic aims to reduce the mental health challenges associated with childhood grief. Bereaved young commonly suffer challenges including anxiety, depression and suicidal ideation.  This contributes to the nearly one quarter of young people in Australia who experience some form of mental health challenge .

How to find out more?

To read more about the outstanding work of Feel the Magic, or to enquire about enrolment, go to https://feelthemagic.org.au/

National Volunteer Week May 16-22, 2022


Volunteers.  The very heartbeat of the Cooper Rice-Brading Foundation.

How do we ever thank you enough for the countless hours you dedicate to the cause?  Your high level skill & expertise? Or  the endless support you provide free of charge to the sarcoma community nationally?

At CRBF we are a 100% voluntarily run organisation.  We continue to be humbled by those who work tirelessly behind the scenes, and who are the very pulse of not for profits like CRBF.

Thank you from the bottom of our heart(s) for brightening the lives of those living with a sarcoma diagnosis.